Share your experiences and help improve neuro services: fill out #MyNeuroSurvey

Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often this isn’t the case.

The next iteration of the My Neuro Survey was launched on 22 July 2024.

This is the largest patient experience survey of people affected by neurological conditions, including friends and family, in the UK. 

The last My Neuro Survey saw 834 respondents from Scotland, and, with your help, we are hoping to increase this number to 1,000. 

Please share your experiences and help improve services for everyone affected by neurological conditions now...

 

  1. Visit https://bit.ly/3A1kpzi
    • If you are filling out survey on behalf of someone else, please complete the carers’ survey – this survey explores your experiences and the experiences of the person/people you care for.
  2.  Please get in touch with our survey partners Revealing Reality on +44(0)20 7735 8040 (standard network rates apply), or email myneurosurvey@revealingreality.co.uk to:
    • Complete the survey over the phone if this suits you better
    • Request to complete the survey in a preferred language.
  3. Get in touch with the Neurological Alliance (England) by calling +44(0) 1923 882 590 (standard network rates apply) and leaving a voicemail, or emailing survey@neural.org.uk to request a paper copy.
  4. Tell everyone you know about #MyNeuroSurvey –share this page on social media. Alternatively, if you feel able, record a short video on your phone saying why you’re taking part in #MyNeuroSurvey. Send it to us via email it to us at admin@scottishneurological.org.uk and we’ll share it on social media.

Who can take part?

  • Adults, children and young people (people under 18) with a confirmed or suspected diagnosis of a neurological condition
  • People who provide support for someone with a neurological condition, including parents, guardians and carers can take part
  • If you are filling out survey on behalf of someone else, please complete our carers’ survey – this survey explores your experiences and the experiences of the person/people you care for.

Share your experiences

By sharing your experiences you help build a picture of treatment, care and support for people affected by neurological conditions throughout the UK and the Republic of Ireland. Results from the 2021/2022 survey are being used to back our calls for a government led Neuro Taskforce and our ongoing #BackThe1in6 campaign, calling on government to improve workforce and services for everyone affected by neurological conditions. 

Make a real difference

The survey takes around 20 minutes to complete. It’s completely anonymous and secure. Please take part and make your voice heard. The survey is carried out by a third party and they must keep personal information confidential by law. By taking part you will help improve treatment, services and care for everyone affected by neurological conditions.

Please complete the survey by 15 November 2024.

Thank you.

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