PSPA launch new web page for young people
NAoS member, PSPA has launched a new web page to help young people who have family members with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) to gain a better understanding of the conditions.
The information was developed in collaboration with a Young Person’s Advisory Group. This group ensured the information was pitched at the right level and answered all the questions young people might have about the conditions their family members are living with.
Share your experiences and help improve neuro services: fill out #MyNeuroSurvey
Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often this isn’t the case.
The next iteration of the My Neuro Survey was launched on 22 July 2024.
This is the largest patient experience survey of people affected by neurological conditions, including friends and family, in the UK.
The last My Neuro Survey saw 834 respondents from Scotland, and, with your help, we are hoping to increase this number to 1,000.
Please share your experiences and help improve services for everyone affected by neurological conditions now...
PSPA #WeCare campaign calls for improved support for carers
NAoS member PSPA, is backing calls to improve the support available for unpaid carers.
To do this, PSPA, the only UK charity dedicated to supporting people living with rare neuro-degenerative conditions called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), has launched a new awareness campaign called #WeCare.
Mental Health is Casualty of Poor Coordination and Funding between Health Service and Third Sector
Lack of access to mental health services for people affected by neurological conditions is profoundly impacting the wellbeing of people across Scotland. Our report released on 13 May 2024 to coincide with Mental Health Awareness Week shows how the underfunded neurological third sector is struggling to cope with the volume and intensity of demand for mental health support amongst those affected by neurological conditions who cannot get support from the NHS.
MS Unfiltered: Joint MS campaign for MS Awareness Week
This MS Awareness Week (22-28 April 2024), NAoS members the MS Society, the MS Trust and Neuro Therapy Network have teamed up with MS charities across the UK to launch their MS Unfiltered campaign.
The campaign comes in response to a recent study which found that over a third of people with MS have avoided seeking medical help due to embarrassment.
Thanks to the MS Trust for providing the following press release from all of the organisations involved.
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